When I gleefully started my blog it was all going to be about being middle aged. So, let’s think about age. After all, this is meant to be about middle age not just having MND.
Is there anything wrong with any age? The one thing I have learnt with MND is that it can strike at any age. Not, as far as I know, in childhood, but there are people far younger than me with the same disease, and people far older too. To start with, I have to confess how jealous I felt of people being diagnosed in their 70s or 80s but that way lies madness. I wouldn’t have chosen to have MND but hey, I have it and just have to live with it. It helps me to read masses and I am usually pretty perky but everyone has to find what works for them.
I wrote about age early last year when I had no idea there was anything wrong with me. Have a look at what I said then. There are some fantastic heroes to be found of all ages. I stand by the people I suggested in my earlier post, but have a look at your friends and family and I am sure you will find really inspiring people. They are all over the place once you start looking. I am amazed by how many of my friends take the time to see me and wait thoughtfully while I use my app to speak for me. It isn’t just friends, all sorts of people round the town know I can’t speak but also understand that there is nothing wrong with my brain.
I had to have a blood test this week and the nurse doing it described me a ‘sharp cookie’ It could have been condescending but I was actually flattered. It takes thought to appreciate what I know when I have to rely on an app to speak for me and slowly type stuff in.
This time I am not going to suggest heroes of different ages. I want you to look at your own friends and family. I have a lot of wonderful friends, and superb family members too. No one has drifted away from me yet, despite what I have. Just wonderful. I have a mass of inspiring people in my life.
My friend Kate (the physiotherapist I did a question and answer post with a few months ago) came up to Inverness for the weekend. She was wonderful. She taught me a couple of useful tricks to try. One involves stretching my fingers and the other was a top tip when I have a coughing fit. Yippee. She also coped with the kitchen tissue I often have in my mouth. I must sort my drooling soon! It isn’t a really attractive look. Very handy though.
I have mentioned Dagmar Munn and her blog before as I am hugely impressed by it. She bounces. I wanted to bounce too. Look at this post of Dagmar’s and will see why I was keen. It looks such fun. Have a look at her video too. I may have wanted a special trampoline but how could I afford it? Then my lovely mother gave each child some money. Yippee. I could get the exact trampoline. Here it is sitting proudly in our bedroom Notice the exercise bike peeking out in the background. I use that too.
Will it help me reach a greater age? No idea, but I love it. I am building up slowly so two songs on my phone at the moment. Dagnar Munn manages twenty minutes so I am hoping to get there too. I love having a goal. Hopefully you do too. Next time I may stun you with a picture of me on the trampoline. I showed Kate and she couldn’t resist having a go. Luckily she was impressed.
With MND things sort of fall into your lap. It is rather lovely. MND Scotland give me 10 free massage sessions. Just gorgeous. The local hospice give me six free reflexology sessions. Also wonderful. I have a bar on the bed to help me get out. And last week I got a second bannister. These things just materialise. Perfect. I must show you our two bannisters. It is a bit of a dark photo but look.
A joiner just arrived and installed the second bannister. I don’t need it yet but it is lovely to have.
Are you wondering what age has to do with any of this? It hasn’t much really. There is lots of longevity in my family and I always imagined I would reach old age. It is unlikely now. But that isn’t a reason to give up. There is so much fun to find once you look. It doesn’t matter what age you are. My children are both at University now. One has just gone and the other is doing a masters. I am so proud of them. They are both having a lot of fun.
I know people of all ages who are having fun. Age is immaterial. I love the people who go out and find the fun. But you don’t even have to go out to have fun. I would love everyone to find some fun every day. It is so lovely to laugh.
I love finishing posts with a song and I suddenly remembered Itsy Bitsy Teeny Weeny Yellow Polka Dot Bikini. Did you know Brian Hyland was only 16 when he had this hit? I sidled off to look for a video. The quality isn’t great but this is a very weird video. Do take a look. I hope it amazes you.